Thursday, June 23, 2016

July Meeting Cancelled

Due to the scheduling conflict with the Narcolepsy Meetup, Chicago, we are cancelling our July meeting.
Our next meeting will be Saturday, August 6 - 10:30 until noon
at
NorthShore University HealthSystem
Evanston Hospital

We apologize for any inconvenience this cancellation may cause.

Hopefully, many of you will be attending the Narcolepsy MeetUp, Chicago and
we will see each other there

It is our understanding that registration for the event is now closed. That doesn't mean you shouldn't check the link to their website (below) and make any necessary calls to see if there are cancellations or a waiting list.

Narcolepsy Meetup Tour - Chicago

See you at the Meetup OR at our August meeting.

Saturday, June 18, 2016

Rare Disease - Narcolepsy Meetup - Chicago

 The Global Genes Organization is sponsoring a "mini-conference" in Chicago on July 9 with an optional dinner/meet and greet on Friday, July 8.

The link below will take you to the website that explains the meet up and its objectives.

Narcolepsy Meetup Tour - Chicago

If enough people from our Support Group decide to go, we will just cancel our Support Group Meeting on Saturday, July 9.

If people opt NOT to go, it is possible to go ahead with our normal support group meeting

BUT for July, there will be no conference phone available


Please let us know if you will be attending the meet up or will attend our regular support group (use the comments section below OR email us at midwestnarcolepsy@gmail.com so that we can figure out how to best accommodate everyone (or as many people as possible)

Thank you

Wednesday, June 1, 2016

June Meeting Reminder

Here's hoping everyone had a restful, enjoyable, memorable Memorial Day!
The next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for
Saturday, June 4, 2016
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 
 (ask for directions at the Information/Concierge desk)     
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

Wednesday, May 4, 2016

Doctor Referrals

WE HAVE ADDED A NEW PAGE TO OUR WEBSITE!

It's called Doctor Referrals and gives a listing of physicians that treat patients with 

Narcolepsy and Idiopathic Hypersomnia

AND

have been recommended by one of our Support Group Members

 

You can find the physician by state and city.
The information includes the physician's name, the hospital or clinic they are associated with, their specialty AND a link to get additional information (phone numbers, office hours, etc.)

Take a look and let us know what you think.
Drop us an email or give a comment if you have a physician that you feel should be added to the list.