Tuesday, June 13, 2017

DNA study change

Dr Canam has advised one of our members that the university has been able to revise his study permit to allow for people to take samples by themselves and send them in by mail. 

So if you are interested in participating, please contact him by email (tcanam@eiu.edu) and he will be able to contact you about participating in the study. 

Monday, June 5, 2017

June Meeting Phone Snafu

Apologies to all who may have tried to call in to Saturday's Meeting. Due to scheduling conflicts and personal emergencies, the phone did not make it to the meeting room (we tried, we really did!). A notice was put on our facebook page but may have been missed.

In the future, if you are having problems making a connection, please check our facebook page for information.


Thank you for your continued patience and support -

Midwest Narcolepsy Support Group
Midwest Narcolepsy Support Group on Facebook

Thursday, June 1, 2017

June Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, June 3, 2017

  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsymedication, diet, etc. 
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#
Please note that we have a NEW PASSCODE
We hope to see (or hear from) you on Saturday!!

Wednesday, May 10, 2017

In Regards to the DNA Research Study

Dr Canam has advised members of the following:

Sample collection through universities (like EIU) is strictly regulated.  ... current permit does not allow for people to take samples by themselves and send them in by mail. But, Dr Canam is going to ask the institutional review board if it is possible to make a change to his permit to allow this.

So if you are interested in participating, please contact him by email (tcanam@eiu.edu) so that he will know how many are interested and he will be able to contact you if the regulations change.

We apologize for any confusion our posting has caused.