Friday, April 27, 2012
2012 Narcolepsy Network Patients Conference
Plans are currently underway for the 27th Annual Narcolepsy Network Conference which is scheduled for October 19-21 in Cleveland,Ohio. Several members of our Support Group are involved in the various committees that are dedicated to making this years conference the best it can be. For more information, look at the Narcolepsy Network website (27th Annual Narcolepsy Network Conference).
This years keynote speaker is Emmanuel Mignot, MD, PhD, Director, Stanford University Center for Narcolepsy who you don't want to miss.
Tuesday, April 10, 2012
April Meeting Reminder
The next meeting of the
Midwest
Narcolepsy Support Group
is scheduled for
Saturday,
April 14, 2012
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
2650 Ridge, Evanston, IL 60201
Meeting Room G952,G956 - Evanston Hospital
(ask for
directions at the Information/Concierge desk)
This Meeting will be an open forum
discussion on Narcolepsy and the everyday challenges of living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Please join us. As always, your input is invaluable.
For those who can't join us in
person, the conference phone is:
866 249 2022 code 4897648210#
Sunday, April 8, 2012
Looking for help with pricey drugs
We have someone who is wondering if anyone knows of a program that might provide prescription assistance for
individuals who have Narcolepsy?
Anyone with any ideas, please comment here or by email to midwestnarcolepsy@gmail.com
This request comes from someone who states they have searched for any type of prescription assistance program to help
with Dextroamphetamine, Dexedrine or Dextrostate, but cannot find
anything. Neither GlaskoSmithKline nor Amedra Pharmaceuticals offer a
program for Dexedrine since it is offered in a generic form
(Dextroamphetamine). Even though Dextroamphetamine is a generic drug, its price (even for this generic drug) is nearly $400.00
per month.
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