Friday, August 17, 2012

Car pool!

Do you need a ride to Cleveland to attend the Narcolepsy Network conference in October?

Are you local to southeast Wisconsin or northeast Illinois?

If so, we may have a solution for you!

We are planning to rent vans and drive (we have non-narcoleptic volunteers!) to Cleveland. Each van can seat six comfortably and seven slightly more cozily. With the cost of the van and gas, it would be $80/person round trip.

If you'd like to participate, please send us an email at midwestnarcolepsy [at] gmail [dot] com. We need an accurate headcount by September 30, 2012 in order to arrange for the vans and drivers.

Thank you!

Wednesday, August 15, 2012

Narcolepsy Network Patient Conference Early Bird Registration Ends August 15!!!

To get discounted registration for this year's conference, registration must be received by end of day August 15. Go to (Narcolepsy Network Patient Conference 2012).

Also, all scholarship applications are due by the end of the day, August 15. For applications, go to Narcolepsy Network Conference Scholarship Applications 2012_final.

Hope to see you there!

Tuesday, August 14, 2012

The Life of the Sleepy Person Conference - One Person's Opinion

On Saturday, July 21, 2012 - the University of Illinois at Chicago's Center for Narcolepsy Sleep and Health Research sponsored it's 8th version of their Sleepy Person's Conference. They hold the conference every three years to benefit all of the sleepy people in the Chicagoland/Midwest area who are able to attend. 

Due to funding considerations, this year's conference was delayed for over a year. For this conference the focus was on Narcolepsy - not sleep apnea or any of the more notable sleep disorders. And, lets face it, narcolepsy just isn't as "sexy" as the other sleep disorders. So getting funding isn't as easy if you don't combine narcolepsy with something more "profitable". 

The conference focused on helping people with Narcolepsy learn how to live with it in their everyday life. 

The agenda was diverse and well rounded covering a wide variety of topics ranging from an overview of Narcolepsy in general, to both traditional and non-traditional treatments, to the status of Narcolepsy research to how it is diagnosed. There was even a panel discussion featuring several members of our support group where they were asked to share their various ways of coping with the challenges of being a narcoleptic in 2012.

The conference was free and both a continental breakfast and a very nice lunch were included. The biggest concern I heard from most guests was that the speakers were so enthusiastic about their topics that every one of them spoke longer than they were scheduled for so that one of the speakers didn't get to present on their topic at all. It made for a long day ( from 9 am until about 3:30 with a break for lunch and two short breaks to get up and stretch ).

All and all it was a very successful conference and I look forward to the next one, hopefully in 2015!