Wednesday, October 24, 2012

27th Annual Narcolepsy Network Conference Attendee Notes - One Person's Observations

The Conference was different this year, viewed from a different perspective because I  volunteered at the conference and did my best to help in planning and setting things up. I got to see how much work went into it, how early everything started (meetings started as early as January/February/March) and how much still had to be done at the last minute. I can tell you, the men and women who have done this for years deserve medals of valor for having put together some amazing programs through the years and this years conference was no exception.

There were a wide variety of sessions offered ranging from crafty sessions for the young and young at heart to the more medically focused sessions to learn the latest advances in research to less medical but none the less helpful sessions like "How to make the most of your doctors visits".

Every time slot had the potential for four or five different sessions making it virtually impossible for you to get to everything. I had my husband and  my daughter there and they helped cover sessions, but we still didn't see them all (we weren't interested in them all either).

There was even a quiet room set up with cots for those who absolutely couldn't function any longer without a nap. I can vouch for the fact that the cots were quite comfortable but they could have used a couple more of them as well as a couple more blankets.

We took full advantage of all of the activities we could by going to dinner in Little Italy at Mama Santa's on Friday with about 8 to 10 of our new best friends and had some delicious food and a wonderful time. On Saturday, we went on the NAUTICA QUEEN dinner cruise where the service was fantastic, the food adequate, the company superb and I discovered that I was claustrophobic. Too many people with no place to go got very old after three hours. I was very ready to get off the boat.


The hotel was also very nice. And you couldn't beat the price.

As with anything, nothing is perfect and there are always things that can be improved. The food was not the best - desserts were very nice but you can't live on deserts (the chocolate bomb was very good). We were not close to alternate food options so we just ate what was offered.


Overall, I felt the conference was a huge success. The date for next years conference has not been announced, but the location has been.

The 28th Annual Narcolepsy Network Conference is planned to be held in Atlanta, Georgia!! 

We hope to see you all there!!

Anyone who attended, please feel free to add their thoughts by posting comments here.

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