Sunday, October 27, 2013

November Meeting Reminder

The Next Meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, November 2, 2013
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956 - Evanston Hospital
 (ask for directions at the Information/Concierge desk)     
At this Meeting we will answer any questions you might have about the Conference  
(for those of you who were unable to attend)
and we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

For those who can't join us in person, the conference phone is:
1 (866) 374-5135 ~ Passcode ~ 8283408#

Monday, October 21, 2013

Atlanta Conference - 2013 - Summary

We arrived at the conference site around 5:00 on Friday - just in time to check in, get situated in my room, go through conference registration and get to the special focus group to discuss the journey to getting diagnosed with narcolepsy. The focus group was not open to all conference goers but to a group of members who had volunteered to be a part of the focus group and then had been selected from the group of volunteers.

After the focus group, my support team and I met up at the "Meet & Greet" where we connected with many other members of the MNSG as well as a few from our sister group in Kenosha. We also connected with several old friends from previous conferences.

Everyone was tired from their day of travel, so we left the party early (no ice cream for me on Friday) and went to bed with great anticipation for an exciting and informative conference to begin on Saturday.

To outline each session would take more energy than I can gather at the moment. Suffice it to say, the conference had a record breaking attendance of over 400 participants, the sessions were interesting, the member meeting was lively, and the extra activities seemed to satisfy the socialization needs of most people! 

There were a lot of sleepy, happy, people exchanging emails and other contact information with friends, both old and new as they left Atlanta, most already making plans to meet up again in 2014 in Denver!!

Wednesday, October 16, 2013

2013 Narcolepsy Network Conference - Atlanta - Here We Come!!

The conference is just a couple of days away and I am getting packed so I will be ready to leave tomorrow. We are driving to Atlanta so will be leaving late Thursday with a rest stop scheduled in Indy and then onward to Atlanta. If time and energy permits, will post updates on conference activities for those unable to join us. As always, I am both excited and a little apprehensive (crowds aren't my strong suit) but am very much looking forward to seeing everyone and meeting new people.


Hope to see you at the conference. If not, will see you soon!!

Sunday, October 6, 2013

Something to Think About



Just sharing a re-post from one of our narcoleptic friends on Facebook. I found that I could relate to the sentiment.

Tuesday, October 1, 2013

October Meeting Reminder

The Next Meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, October 5, 2013
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956 - Evanston Hospital
 (ask for directions at the Information/Concierge desk)     
This Meeting will be an open forum discussion on Narcolepsy and living with Narcolepsy
We will also try to answer any questions you might have about the upcoming Conference
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

For those who can't join us in person, the conference phone is:
1 (866) 374-5135 ~ Passcode ~ 8283408#