January Meeting Reminder

We Welcome 2015!
Happy New Year to Everyone - 
Here is hoping that 2015 is an outstanding year, for all of the most positive reasons!
The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, January 3, 2015

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about New Year's Resolutions as well as 
having an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

December Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, December 6, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about holiday stress as well as 
having an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Lets socialize after the regular meeting! 
For those present, we will have a
HOLIDAY PIZZA PARTY!!
(unfortunately our phone attendees will be unable to enjoy pizza with us. We wish you the happiest of holiday's even though you won't be able to join us.)
We will take a head count for those who are going to stay at about 11:00 or 11:15 on Saturday. If you want to participate but don't think you will be at the meeting before 11:15, send an email so we can count you in.
If you want to bring cookies or a salad or something else to share, you are most welcome to do so. 

Pizza's will be ordered arount 11:30.
(We are hoping to be organized earlier next year so that we can also have a "Secret Santa Gift Exchange". )

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

The Holidays are Upon Us - December Meeting Thoughts

At the November meeting, it was suggested that we do an additional something "different" for the December meeting - to Celebrate the Season. The meeting will be December 6. (We would have a meeting as usual, this would be in addition to the meeting, after the participants on the phone have signed off) Some thoughts might be:
                    A cookie exchange
                    A group lunch after the meeting
                    A "Secret Santa" gift exchange after the meeting (bring a gift, leave with a gift with a price limit)
                    A combination of the above
                    Any other suggestions
Any input would be appreciated. A decision will be made at least a week prior to the meeting (hopefully) and plans will be posted here and on our Facebook page.


Let us know your thoughts.

November Meeting Reminder!!

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, November 1, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about our experiences at the annual conference as well as 
having an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

October Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, October 4, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Our  new conference phone is working very well.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 
~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

September Meeting - Annual Picnic

The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
Annual Family & Friends Picnic
scheduled for

Saturday, September 6, 2014

12:00 noon until 5:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 
Feel free to bring your favorite dish to share. 

We hope to see you there!!

August Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, August 2, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Room 1602 Pediatrics - Evanston Hospital 
* * * NOTE THE ROOM CHANGE * * *

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
We will also be discussing arrangements for the annual picnic in September which will replace our normal monthly meeting. 

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 ~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

NOTE: If anyone would like to stay after the meeting and go to lunch someplace local, come with ideas as to where you might want to go. 

July Meeting Reminder - NOTICE - MEETING IS CHANGED TO 2ND SATURDAY DUE TO HOLIDAY

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, July 12, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 
~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

June Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, June 7, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Our  new conference phone is working very well.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 
~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

May Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group

is scheduled for

Saturday, May 3, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Room 1602 Pediatrics - Evanston Hospital 
* * * NOTE THE ROOM CHANGE * * *

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 ~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

April Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, April 5, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Our  new conference phone is working very well.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 
~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

March Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group

is scheduled for

Saturday, March 1, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about 
2014 - National Suddenly Sleepy Saturday - March 8, 2014
2014 - MNSG Suddenly Sleepy Saturday - (Sunday) April 13, 2014 (hopefully better weather)
What can we expect this year?
We will also have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Our  new conference phone is working very well.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1 (866) 374-5135 
~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

After the regular meeting: 

One of our group members has been working on a website to provide an additional level of support to people with a wide variety of conditions/diseases/disabilities (like narcolepsy) that will help them connect for support in a different way.  It is still in development but we will be given a “sneak peek” after our regular meeting on Saturday if anyone would like to stay and see the demonstration.

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February Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group

is scheduled for

Saturday, February 1, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms 1602 Pediatrics - Evanston Hospital 
* * * NOTE THE ROOM CHANGE * * *

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about 
2014 - National Suddenly Sleepy Saturday - March 8, 2014
2014 - MNSG Suddenly Sleepy Saturday - (Sunday) April 13, 2014 (hopefully better weather)
What can we expect this year?
We will also have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Our  new conference phone is working very well.
 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1 (866) 374-5135 ~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!! 

PS: Just a note to "toot our own horn" so to speak. March 2014 will be the 5 year anniversary of the debut of our Midwest Narcolepsy Support Group website. In that time, the website has been viewed close to 25,000 times which may not seem like a lot in the grand scheme of things, but it is far beyond anything we expected. We have gone from being satisfied when there were 50 views each month to being nonchalant about 50 views a day. We thank each of you for your ongoing support and encourage you to provide your input on anything you think we can do to improve the website.

 

January Meeting Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group

is scheduled for

Saturday, January 4, 2014

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956 - Evanston Hospital

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will talk about 
2014 - New Years Resolutions - What can we expect this year?
We will also have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

Good News! We have a new conference phone WITH two extension speakers so 
we should have much better success hearing and understanding each other 
if you decide to call in.
 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1 (866) 374-5135 ~ Passcode ~ 8283408#