Happy Holidays 2016

Thanks to all who joined us for our Holiday celebration. The pizza was good, the treats were better and the gifts were so much fun! Better yet, was the company who stayed to share the celebration.

Here's wishing you all the best holiday ever! We hope to see you in January.

December Holiday Party Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, December 3, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

After our regular meeting, we will have our 

3rd Annual Holiday Party!!
(Sorry, we will be closing out the phone line at noon, as usual)

This will include Pizza
(a donation of $5 per person would be appreciated, but is not REQUIRED for participation in the Pizza portion of the party), 

any additional food you want to bring to share (including holiday cookies!!)

as well as a

Fun Gift Exchange

To qualify as a "Fun Gift" the gift has to come from someplace like 

the Dollar Store or Dollar General or the Family Dollar Store 

or from the $1 bins at Target or something similar. Gifts should range in price from $1.00 to $5.00

(Last years gifts included a travel lint roller, a "pirate hook", erasures, stickers, coloring books, etc.) 

You can bring one gift or more, make sure they are wrapped, and we will

enjoy the traditional exchange of gifts and food.

Remember, you don't need to spend a lot of money for this to be lots of fun.

November Meeting Room Change

We will be meeting in the same "meeting" hallway, but in the rooms to the left instead of to the right.

November Meeting Reminder

The next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, November 5, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
We will also be discussing plans for our December "Holiday" Meeting!!

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

Picnic Recap

Well, the weather threatened us, but we stood our ground and proceeded with our picnic in spite of the dodgy weather. When it turned out to be a very pleasant day, we were grateful, to say the least.

We met some new friends and caught up with some old friends and had a wonderful time.

If you were there, thanks for coming and sharing your day with us. If you were unable to join us, whatever the reason, we hope to see you next year. Put the date on your calendar now. Our next Family and Friends Picnic will be Saturday, September 9, 2017!!! 

We hope to see you there.

October Meeting Reminder

The next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, October 1, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!


Narcolepsy Network is conducting a survey for both members and non-members, to determine how they can best serve people with narcolepsy.  

Deadline for completing the survey is midnight, Sunday, October 2

Narcolepsy Network Survey 

Family and Friends Picnic Reminder!

The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
6th Annual Family & Friends Picnic
scheduled for

Saturday, September 10, 2016

11:30 AM until 5:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.

Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 

Feel free to bring your favorite dish to share. 

We hope to see you there!!

Early Bird Registration for the Narcolepsy Network Annual Conference Ends Soon!

Early Bird Registration ends August 15! After August 15, the cost of registration goes up. Register soon for the best rate possible!

Narcolepsy Network Conference 2016 Registration 

September Family and Friends Picnic Details

The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
6th Annual Family & Friends Picnic
scheduled for

Saturday, September 10, 2016

11:30 AM until 5:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 
Feel free to bring your favorite dish to share. 

We hope to see you there!!

August Meeting Reminder

The next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, August 6, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

July Meeting Cancelled

Due to the scheduling conflict with the Narcolepsy Meetup, Chicago, we are cancelling our July meeting.

Our next meeting will be Saturday, August 6 - 10:30 until noon

at

NorthShore University HealthSystem

Evanston Hospital

We apologize for any inconvenience this cancellation may cause.

Hopefully, many of you will be attending the Narcolepsy MeetUp, Chicago and

we will see each other there

It is our understanding that registration for the event is now closed. That doesn't mean you shouldn't check the link to their website (below) and make any necessary calls to see if there are cancellations or a waiting list.

Narcolepsy Meetup Tour - Chicago

See you at the Meetup OR at our August meeting.

Rare Disease - Narcolepsy Meetup - Chicago

 The Global Genes Organization is sponsoring a "mini-conference" in Chicago on July 9 with an optional dinner/meet and greet on Friday, July 8.

The link below will take you to the website that explains the meet up and its objectives.

Narcolepsy Meetup Tour - Chicago

If enough people from our Support Group decide to go, we will just cancel our Support Group Meeting on Saturday, July 9.

If people opt NOT to go, it is possible to go ahead with our normal support group meeting

BUT for July, there will be no conference phone available

Please let us know if you will be attending the meet up or will attend our regular support group (use the comments section below OR email us at midwestnarcolepsy@gmail.com so that we can figure out how to best accommodate everyone (or as many people as possible)

Thank you

June Meeting Reminder

Here's hoping everyone had a restful, enjoyable, memorable Memorial Day!
The next meeting of the
Midwest Narcolepsy Support Group 

is scheduled for

Saturday, June 4, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

Doctor Referrals

WE HAVE ADDED A NEW PAGE TO OUR WEBSITE!

It's called Doctor Referrals and gives a listing of physicians that treat patients with 

Narcolepsy and Idiopathic Hypersomnia

AND

have been recommended by one of our Support Group Members

 

You can find the physician by state and city.

The information includes the physician's name, the hospital or clinic they are associated with, their specialty AND a link to get additional information (phone numbers, office hours, etc.)

Take a look and let us know what you think.

Drop us an email or give a comment if you have a physician that you feel should be added to the list.

  

May Meeting Reminder

The next meeting of the
Midwest Narcolepsy Support Group 

is scheduled for

Saturday, May 7, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you on Saturday!!

April Meeting Reminder

The next meeting of the
Midwest Narcolepsy Support Group 

is scheduled for

Saturday, April 2, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

After the meeting, we will have a delayed celebration of
Suddenly Sleepy Saturday 
(earlier in March)
at the 

Walker Brothers Pancake House

on Greenbay Road in Wilmette

(anyone taking public transportation to the meeting will be able to catch a ride from one of the driving attendees, for sure.)

We hope to see (or hear from) you on Saturday!!

March Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, March 5, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

The meeting is open to ALL - patients and their "Support Team" members.

Join us, we welcome your input.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you Saturday!!

February Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, February 6, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy

The meeting is open to ALL - patients and their "Support Team" members.

Join us, we welcome your input.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you Saturday!!

January Meeting Re-cap

Just a quick note to thank everyone for coming to today's meeting. We were "standing room only" and had some fantastic discussions. Unfortunately, sometimes there were numerous discussions going on at the same time, but it just made it feel more like home (at least I know that's how discussions go at my dinner table!!).

Best wishes to those who were "under the weather". Hope you are feeling better soon.  

Our next meeting is February 6. Same time. Same place. A reminder will be sent out.

January Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, January 9, 2016

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 (ask for directions at the Information/Concierge desk)     

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
We will also discuss the recent Narcolepsy Network Conference in Minneapolis (time permitting)

The meeting is open to ALL - patients and their "Support Team" members.

Join us, we welcome your input.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 8283408#

We hope to see (or hear from) you Saturday!!