Sunday, December 4, 2016
Saturday, November 26, 2016
December Holiday Party Meeting Reminder
Our next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, December 3, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
After our regular meeting, we will have our
3rd Annual Holiday Party!!
(Sorry, we will be closing out the phone line at noon, as usual)
(Sorry, we will be closing out the phone line at noon, as usual)
This will include Pizza
(a donation of $5 per person would be appreciated, but is not REQUIRED for participation in the Pizza portion of the party),
any additional food you want to bring to share (including holiday cookies!!)
as well as a
Fun Gift Exchange
To qualify as a "Fun Gift" the gift has to come from someplace like
the Dollar Store or Dollar General or the Family Dollar Store
or from the $1 bins at Target or something similar. Gifts should range in price from $1.00 to $5.00
(Last years gifts included a travel lint roller, a "pirate hook", erasures, stickers, coloring books, etc.)
You can bring one gift or more, make sure they are wrapped, and we will
enjoy the traditional exchange of gifts and food.
Remember, you don't need to spend a lot of money for this to be lots of fun.
Wednesday, November 2, 2016
November Meeting Room Change
We will be meeting in the same "meeting" hallway, but in the rooms to the left instead of to the right.
Tuesday, October 25, 2016
November Meeting Reminder
The next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, November 5, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
We will also be discussing plans for our December "Holiday" Meeting!!
We will also be discussing plans for our December "Holiday" Meeting!!
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
Tuesday, September 27, 2016
Picnic Recap
Well, the weather threatened us, but we stood our ground and proceeded with our picnic in spite of the dodgy weather. When it turned out to be a very pleasant day, we were grateful, to say the least.
We met some new friends and caught up with some old friends and had a wonderful time.
If you were there, thanks for coming and sharing your day with us. If you were unable to join us, whatever the reason, we hope to see you next year. Put the date on your calendar now. Our next Family and Friends Picnic will be Saturday, September 9, 2017!!!
We hope to see you there.
We met some new friends and caught up with some old friends and had a wonderful time.
If you were there, thanks for coming and sharing your day with us. If you were unable to join us, whatever the reason, we hope to see you next year. Put the date on your calendar now. Our next Family and Friends Picnic will be Saturday, September 9, 2017!!!
We hope to see you there.
October Meeting Reminder
The next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, October 1, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
Narcolepsy Network is conducting a survey for both members and non-members, to determine how they can best serve people with narcolepsy.
Deadline for completing the survey is midnight, Sunday, October 2
Narcolepsy Network Survey
Narcolepsy Network is conducting a survey for both members and non-members, to determine how they can best serve people with narcolepsy.
Deadline for completing the survey is midnight, Sunday, October 2
Narcolepsy Network Survey
Tuesday, September 6, 2016
Family and Friends Picnic Reminder!
The Next Meeting of the
Midwest Narcolepsy Support Group
is our
6th Annual Family & Friends Picnic
scheduled for
6th Annual Family & Friends Picnic
scheduled for
Saturday, September 10, 2016
11:30 AM until 5:00 PM
(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)
Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network.
Feel free to bring your favorite dish to share.
We hope to see you there!!
Wednesday, August 10, 2016
Early Bird Registration for the Narcolepsy Network Annual Conference Ends Soon!
Early Bird Registration ends August 15! After August 15, the cost of registration goes up. Register soon for the best rate possible!
September Family and Friends Picnic Details
The Next Meeting of the
Midwest Narcolepsy Support Group
is our
6th Annual Family & Friends Picnic
scheduled for
6th Annual Family & Friends Picnic
scheduled for
Saturday, September 10, 2016
11:30 AM until 5:00 PM
(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)
Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network.
Feel free to bring your favorite dish to share.
Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network.
Feel free to bring your favorite dish to share.
We hope to see you there!!
Wednesday, August 3, 2016
August Meeting Reminder
The next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, August 6, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
Thursday, June 23, 2016
July Meeting Cancelled
Due to the scheduling conflict with the Narcolepsy Meetup, Chicago, we are cancelling our July meeting.
Our next meeting will be Saturday, August 6 - 10:30 until noon
at
NorthShore University HealthSystem
Evanston Hospital
We apologize for any inconvenience this cancellation may cause.
Hopefully, many of you will be attending the Narcolepsy MeetUp, Chicago and
we will see each other there
It is our understanding that registration for the event is now closed. That doesn't mean you shouldn't check the link to their website (below) and make any necessary calls to see if there are cancellations or a waiting list.
Narcolepsy Meetup Tour - Chicago
See you at the Meetup OR at our August meeting.
Saturday, June 18, 2016
Rare Disease - Narcolepsy Meetup - Chicago
The Global Genes Organization is sponsoring a "mini-conference" in Chicago on July 9 with an optional dinner/meet and greet on Friday, July 8.
The link below will take you to the website that explains the meet up and its objectives.
Narcolepsy Meetup Tour - Chicago
If enough people from our Support Group decide to go, we will just cancel our Support Group Meeting on Saturday, July 9.
If people opt NOT to go, it is possible to go ahead with our normal support group meeting
BUT for July, there will be no conference phone available
Please let us know if you will be attending the meet up or will attend our regular support group (use the comments section below OR email us at midwestnarcolepsy@gmail.com so that we can figure out how to best accommodate everyone (or as many people as possible)
Thank you
Wednesday, June 1, 2016
June Meeting Reminder
Here's hoping everyone had a restful, enjoyable, memorable Memorial Day!
The next meeting of the
Midwest Narcolepsy Support Group
The next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, June 4, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
Wednesday, May 4, 2016
Doctor Referrals
WE HAVE ADDED A NEW PAGE TO OUR WEBSITE!
It's called Doctor Referrals and gives a listing of physicians that treat patients with
Narcolepsy and Idiopathic Hypersomnia
AND
have been recommended by one of our Support Group Members
You can find the physician by state and city.
The information includes the physician's name, the hospital or clinic they are associated with, their specialty AND a link to get additional information (phone numbers, office hours, etc.)
Take a look and let us know what you think.
Drop us an email or give a comment if you have a physician that you feel should be added to the list.
May Meeting Reminder
The next meeting of the
Midwest Narcolepsy Support Group
Midwest Narcolepsy Support Group
is scheduled for
Saturday, May 7, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you on Saturday!!
Monday, March 28, 2016
April Meeting Reminder
The next meeting of the
Midwest Narcolepsy Support Group
Midwest Narcolepsy Support Group
is scheduled for
Saturday, April 2, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
After the meeting, we will have a delayed celebration of
Suddenly Sleepy Saturday
(earlier in March)
at the
Suddenly Sleepy Saturday
(earlier in March)
at the
Walker Brothers Pancake House
on Greenbay Road in Wilmette
(anyone taking public transportation to the meeting will be able to catch a ride from one of the driving attendees, for sure.)
We hope to see (or hear from) you on Saturday!!
Tuesday, March 1, 2016
March Meeting Reminder
Our next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, March 5, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
~ Passcode ~ 8283408#
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
The meeting is open to ALL - patients and their "Support Team" members.
Join us, we welcome your input.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you Saturday!!
Wednesday, February 3, 2016
February Meeting Reminder
Our next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, February 6, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
~ Passcode ~ 8283408#
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
The meeting is open to ALL - patients and their "Support Team" members.
Join us, we welcome your input.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you Saturday!!
Saturday, January 9, 2016
January Meeting Re-cap
Just a quick note to thank everyone for coming to today's meeting. We were "standing room only" and had some fantastic discussions. Unfortunately, sometimes there were numerous discussions going on at the same time, but it just made it feel more like home (at least I know that's how discussions go at my dinner table!!).
Best wishes to those who were "under the weather". Hope you are feeling better soon.
Our next meeting is February 6. Same time. Same place. A reminder will be sent out.
Best wishes to those who were "under the weather". Hope you are feeling better soon.
Our next meeting is February 6. Same time. Same place. A reminder will be sent out.
Wednesday, January 6, 2016
January Meeting Reminder
Our next meeting of the
Midwest Narcolepsy Support Group
is scheduled for
Saturday, January 9, 2016
10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital
~ Passcode ~ 8283408#
(ask for directions at the Information/Concierge desk)
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy
We will also discuss the recent Narcolepsy Network Conference in Minneapolis (time permitting)
We will also discuss the recent Narcolepsy Network Conference in Minneapolis (time permitting)
The meeting is open to ALL - patients and their "Support Team" members.
Join us, we welcome your input.
Feel free to join us on the phone if you can't join us in person.
The conference phone is:
1-866-374-5135
1-866-374-5135
~ Passcode ~ 8283408#
We hope to see (or hear from) you Saturday!!
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