NO CONFERENCE PHONE TODAY

Sorry everyone, the cables we tried aren’t working so there will be no conference phone today. 

December Holiday Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, December 1, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

 We hope the technical issues we had last month will be resolved for this meeting.
Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

(If you are unable to connect, we apologize. We are getting replacement cables but if we don't have the correct cables, the connection will not be possible.)
If there is a problem, please check the website or our Facebook page.

We hope to see (or hear from) you on Saturday!!

After our regular meeting, we will have our 

5th Annual Holiday Party!!
(Sorry, we will be closing out the phone line at noon, as usual)

This will include Pizza
(a donation of $5 per person would be appreciated, but is not REQUIRED for participation in the Pizza portion of the party), 

any additional food you want to bring to share (including holiday cookies!!)

as well as a

Fun Gift Exchange

To qualify as a "Fun Gift" the gift has to come from someplace like 

the Dollar Store or Dollar General or the Family Dollar Store 

or from the $1 bins at Target or something similar. Gifts should range in price from $1.00 to $5.00

(In past years gifts included a travel lint roller, a "pirate hook", erasers, stickers, coloring books, etc.) 

You can bring one gift or more, make sure they are wrapped, and we will

enjoy the traditional exchange of gifts and food.

Remember, you don't need to spend a lot of money for this to be lots of fun.

Help Wanted

STILL LOOKING FOR SOMEONE WHO ENJOYS HELPING OTHERS!

(OR IT CAN BE
TWO OR THREE PEOPLE
WILLING TO SHARE THE RESPONSIBILITY!)

Must be willing to commit to attending meetings once a month. 

(The first Saturday each month, unless it is a holiday weekend - then it is the second Saturday)

Meetings are at the
NorthShore University HealthSystem’s 
Evanston Hospital
in
Evanston, IL.

Primary responsibilities: 

attendance at the meeting

Setting up the conference phone for participants who call in

Possible secondary responsibilities (do not necessarily need to be done by the same individual):

Annual verification of room reservation 

Updates to website 

Monitoring and responding to emails

Coordinating annual picnic and holiday meetings

If interested, please send email to: midwestnarcolepsy@gmail.com

No conference phone today!!

There will be no conference phone for today’s meeting. We apparently left an essential cable in Indianapolis. We apologize for any inconvenience. 

November Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, November 3, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Room 1711 Franklin Auditorium Meeting Room, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, medication, diet, etc. 

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

We will be discussing the conference that some of us went to in Indianapolis, Indiana on October 5-7. We would be happy to share as much information as possible if you have questions.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

Help Wanted!

LOOKING FOR SOMEONE WHO ENJOYS HELPING OTHERS!

Must be willing to commit to attending meetings once a month. 

(The first Saturday each month, unless it is a holiday weekend - then it is the second Saturday)

Meetings are at the
NorthShore University HealthSystem’s 
Evanston Hospital
in
Evanston, IL.

Primary responsibilities: 

attendance at the meeting

Setting up the conference phone for participants who call in

Possible secondary responsibilities (do not necessarily need to be done by the same individual):

Annual verification of room reservation 

Updates to website 

Monitoring and responding to emails

Coordinating annual picnic and holiday meetings

If interested, please send email to: midwestnarcolepsy@gmail.com

Trouble Accessing File Fixed

For any of you who tried to access the handout for Dr Freedom’s presentation today, the problem has been fixed. If you try again, it should work. If it doesn’t, it is available through our Facebook group AND through the NN Conference app (available through the Narcolepsy Network website).

We apologize for having so many technical issues with what should be a simple process, but I am a certifiable “Internet Idiot” so I don’t always get it right the first (or second) time!

Also, THERE WILL BE NO MEETING IN EVANSTON TODAY. IF YOU CANNOT BE IN INDIANAPOLIS YOU CAN TRY ACCESSING THE MEETING VIA PHONE.

(866) 374-5135

Passcode: 7342626

Thanks for your patience. 

Updated Link to Presentation Handout.

Here is an updated link to the hand out for Saturday's presentation. When it was tested today, it worked without any problems.

Here's hoping it works for you.

Sleep Disorders and Narcolepsy
handouts for presentation available using the link below

Sleep Disorders and Narcolepsy hand out

If this doesn't work, check out the facebook group. The file was downloaded there as well.

October Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, October 6, 2018

 ****9:00 am Central - 10:50 am Central****
 ****10:00 am in Indianapolis - 11:50 am in Indianapolis****

at the

Narcolepsy Network Conference
Westin Indianapolis Hotel
Indianapolis, Indiana

(room location to be announced)

 Our special guest speaker will be

Dr. Thomas Freedom.

He is the program director of the NorthShore University HealthSystem Sleep Program. He received his MD from the University of Illinois-Chicago. Following a neurology residency and fellowship training at Loyola University Medical Center, he joined the faculty and neurology department at Loyola where he was the co-director of the Sleep Disorders Program. Dr. Freedom joined NorthShore University HealthSystem in January of 2004. He is board certified in Neurology, Clinical Neurophysiology, and Sleep Medicine.

The topic of his presentation will be:

Sleep Disorders and Narcolepsy
handouts for presentation available using the link below

Sleep Disorders and Narcolepsy hand out

 This meeting is open to ALL - patients and their "Support Team" members. 

Join us.

.
 We will try to have the phone lines open for anyone who can't join us in person. We apologize in advance if the call in doesn't work for some reason. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday, October 6!!

October Meeting Change

Please Note the Changes in Meeting Time and Location

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, October 6, 2018

 ****9:00 am Central - 10:50 am Central****
 ****10:00 am in Indianapolis - 11:50 am in Indianapolis****

at

Narcolepsy Network Conference
Westin Indianapolis Hotel
Indianapolis, Indiana

(room location to be announced)

 We are working to line up a special guest speaker. This meeting is open to ALL - patients and their "Support Team" members. 

Join us, your input is invaluable.

 The phone lines will be open for anyone who can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday, October 6!!

September Picnic Reminder

The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
9th Annual Family & Friends Picnic
scheduled for

Saturday, September 8, 2018

11:30 AM until 4:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.

Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 

Feel free to bring your favorite dish to share. 

We hope to see you there!!

September Picnic Reminder

Just a reminder that there is no meeting on Saturday, September 1.


The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
9th Annual Family & Friends Picnic
scheduled for

Saturday, September 8, 2018

11:30 AM until 4:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.

Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 

Feel free to bring your favorite dish to share. 

We hope to see you there!!

September Picnic Details

The Next Meeting of the

Midwest Narcolepsy Support Group

is our 
9th Annual Family & Friends Picnic
scheduled for

Saturday, September 8, 2018

11:30 AM until 4:00 PM

at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.

Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 

Feel free to bring your favorite dish to share. 

We hope to see you there!!

(another reminder will be posted a couple of days before the event!)

August Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, August 4, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Room 1711 Frank Auditorium, - Evanston Hospital 

 We will be discussing the upcoming conference, living with narcolepsy, and our September Picnic. It is open to ALL - patients and their "Support Team" members. 

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

July Meeting Reminder

Happy Independence Day!

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, July 7, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting, we will have an open discussion on public perceptions of Narcolepsy as well as the challenges of living with Narcolepsy.  It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

June Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, June 2, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

Our guest at this meeting will be Tom Canam. Last May, Tom attended our meeting and discussed a study he is involved in titled:  

Sequence variation of the HLA gene in people suffering from narcolepsy and associated disorders.  

He will be attending today's meeting to discuss the results of his study.

  It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

May Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, May 5, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting, we will have an open discussion on public perceptions of Narcolepsy as well as the challenges of living with Narcolepsy.It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

Point Person Needed for June 2nd Meeting

Group,

This note is from Nan. I will be out of town for our June 2nd meeting and need someone to take charge of the phone and facilitating that meeting.

Anyone interested?

April Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, April 7, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting we will have an open discussion on public perceptions of Narcolepsy (with emphasis on the Fox show 911: Season 1 Episode 10 titled: A Whole New You - This episode aired 3-21-2018 and a segment of the episode featured a narcoleptic who had a cataplexy attack and ended up in the morgue!) as well as the challenges of living with Narcolepsy.
It is open to ALL - patients and their "Support Team" members.Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!

March Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, March 3, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

Meeting Rooms G952-G956, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, Suddenly Sleepy Saturday, etc.

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!

February Meeting Reminder

Our next meeting of the

Midwest Narcolepsy Support Group 

is scheduled for

Saturday, February 3, 2018

  10:30 am - 12:00 noon

at

NorthShore University HealthSystem

Evanston Hospital

 2650 Ridge, Evanston, IL 60201

*****Meeting Room 1711 Frank Auditorium, - Evanston Hospital *****

*****Please Note The Room Change*****

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, etc

It is open to ALL - patients and their "Support Team" members.

Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 

The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!