Saturday, November 3, 2018

Help Wanted

STILL LOOKING FOR SOMEONE WHO ENJOYS HELPING OTHERS!

(OR IT CAN BE
TWO OR THREE PEOPLE
WILLING TO SHARE THE RESPONSIBILITY!)

Must be willing to commit to attending meetings once a month. 
(The first Saturday each month, unless it is a holiday weekend - then it is the second Saturday)

Meetings are at the
NorthShore University HealthSystem’s 
Evanston Hospital
in
Evanston, IL.

Primary responsibilities: 
attendance at the meeting
Setting up the conference phone for participants who call in

Possible secondary responsibilities (do not necessarily need to be done by the same individual):
Annual verification of room reservation 
Updates to website 
Monitoring and responding to emails
Coordinating annual picnic and holiday meetings

If interested, please send email to: midwestnarcolepsy@gmail.com

No conference phone today!!

There will be no conference phone for today’s meeting. We apparently left an essential cable in Indianapolis. We apologize for any inconvenience. 

Thursday, November 1, 2018

November Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, November 3, 2018

  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201

Meeting Room 1711 Franklin Auditorium Meeting Room, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsymedication, diet, etc. 
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

We will be discussing the conference that some of us went to in Indianapolis, Indiana on October 5-7. We would be happy to share as much information as possible if you have questions.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#

We hope to see (or hear from) you on Saturday!!

Monday, October 8, 2018

Help Wanted!

LOOKING FOR SOMEONE WHO ENJOYS HELPING OTHERS!

Must be willing to commit to attending meetings once a month. 
(The first Saturday each month, unless it is a holiday weekend - then it is the second Saturday)

Meetings are at the
NorthShore University HealthSystem’s 
Evanston Hospital
in
Evanston, IL.

Primary responsibilities: 
attendance at the meeting
Setting up the conference phone for participants who call in

Possible secondary responsibilities (do not necessarily need to be done by the same individual):
Annual verification of room reservation 
Updates to website 
Monitoring and responding to emails
Coordinating annual picnic and holiday meetings

If interested, please send email to: midwestnarcolepsy@gmail.com

Saturday, October 6, 2018

Trouble Accessing File Fixed

For any of you who tried to access the handout for Dr Freedom’s presentation today, the problem has been fixed. If you try again, it should work. If it doesn’t, it is available through our Facebook group AND through the NN Conference app (available through the Narcolepsy Network website).

We apologize for having so many technical issues with what should be a simple process, but I am a certifiable “Internet Idiot” so I don’t always get it right the first (or second) time!

Also, THERE WILL BE NO MEETING IN EVANSTON TODAY. IF YOU CANNOT BE IN INDIANAPOLIS YOU CAN TRY ACCESSING THE MEETING VIA PHONE.

(866) 374-5135
Passcode: 7342626

Thanks for your patience. 

Thursday, October 4, 2018

Updated Link to Presentation Handout.

Here is an updated link to the hand out for Saturday's presentation. When it was tested today, it worked without any problems.

Here's hoping it works for you.

Sleep Disorders and Narcolepsy
handouts for presentation available using the link below

Sleep Disorders and Narcolepsy hand out

If this doesn't work, check out the facebook group. The file was downloaded there as well.

Sunday, September 30, 2018

October Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, October 6, 2018
 ****9:00 am Central - 10:50 am Central****
 ****10:00 am in Indianapolis - 11:50 am in Indianapolis****
at the
Narcolepsy Network Conference
Westin Indianapolis Hotel
Indianapolis, Indiana

(room location to be announced)

 Our special guest speaker will be

Dr. Thomas Freedom.

He is the program director of the NorthShore University HealthSystem Sleep Program. He received his MD from the University of Illinois-Chicago. Following a neurology residency and fellowship training at Loyola University Medical Center, he joined the faculty and neurology department at Loyola where he was the co-director of the Sleep Disorders Program. Dr. Freedom joined NorthShore University HealthSystem in January of 2004. He is board certified in Neurology, Clinical Neurophysiology, and Sleep Medicine.

The topic of his presentation will be:

Sleep Disorders and Narcolepsy
handouts for presentation available using the link below

 This meeting is open to ALL - patients and their "Support Team" members. 

Join us.

.
 We will try to have the phone lines open for anyone who can't join us in person. We apologize in advance if the call in doesn't work for some reason. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday, October 6!!

Saturday, September 8, 2018

October Meeting Change

Please Note the Changes in Meeting Time and Location

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, October 6, 2018
 ****9:00 am Central - 10:50 am Central****
 ****10:00 am in Indianapolis - 11:50 am in Indianapolis****
at
Narcolepsy Network Conference
Westin Indianapolis Hotel
Indianapolis, Indiana

(room location to be announced)

 We are working to line up a special guest speaker. This meeting is open to ALL - patients and their "Support Team" members. 

Join us, your input is invaluable.


 The phone lines will be open for anyone who can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday, October 6!!

Thursday, September 6, 2018

September Picnic Reminder


The Next Meeting of the
Midwest Narcolepsy Support Group
is our 
9th Annual Family & Friends Picnic
scheduled for
Saturday, September 8, 2018
11:30 AM until 4:00 PM
at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 
Feel free to bring your favorite dish to share. 


We hope to see you there!!

Thursday, August 30, 2018

September Picnic Reminder

Just a reminder that there is no meeting on Saturday, September 1.


The Next Meeting of the
Midwest Narcolepsy Support Group
is our 
9th Annual Family & Friends Picnic
scheduled for
Saturday, September 8, 2018
11:30 AM until 4:00 PM
at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 
Feel free to bring your favorite dish to share. 


We hope to see you there!!

Saturday, August 4, 2018

September Picnic Details

The Next Meeting of the
Midwest Narcolepsy Support Group
is our 
9th Annual Family & Friends Picnic
scheduled for
Saturday, September 8, 2018
11:30 AM until 4:00 PM
at
Skinner Park
check http://www.chicagoparkdistrict.com/parks/skinner-park/ for directions.

(Sorry, but the phone lines will be down for the picnic, in case anyone was wondering)

Street parking is available.
Sandwiches and beverages are provided by generous donation from the Narcolepsy Network. 
Feel free to bring your favorite dish to share. 


We hope to see you there!!

(another reminder will be posted a couple of days before the event!)

Wednesday, August 1, 2018

August Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, August 4, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Room 1711 Frank Auditorium, - Evanston Hospital 

 We will be discussing the upcoming conference, living with narcolepsy, and our September Picnic. It is open to ALL - patients and their "Support Team" members. 

Join us, your input is invaluable.


 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday!!

Wednesday, July 4, 2018

July Meeting Reminder

Happy Independence Day!

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, July 7, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting, we will have an open discussion on public perceptions of Narcolepsy as well as the challenges of living with Narcolepsy.  It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.


 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday!!

Tuesday, May 29, 2018

June Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, June 2, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

Our guest at this meeting will be Tom Canam. Last May, Tom attended our meeting and discussed a study he is involved in titled:  

Sequence variation of the HLA gene in people suffering from narcolepsy and associated disorders.  


He will be attending today's meeting to discuss the results of his study.

  It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.


 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday!!

Tuesday, May 1, 2018

May Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, May 5, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting, we will have an open discussion on public perceptions of Narcolepsy as well as the challenges of living with Narcolepsy.It is open to ALL - patients and their "Support Team" members. Join us, your input is invaluable.


 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#


We hope to see (or hear from) you on Saturday!!

Saturday, April 7, 2018

Point Person Needed for June 2nd Meeting

Group,

This note is from Nan. I will be out of town for our June 2nd meeting and need someone to take charge of the phone and facilitating that meeting.

Anyone interested?

Wednesday, April 4, 2018

April Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, April 7, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this meeting we will have an open discussion on public perceptions of Narcolepsy (with emphasis on the Fox show 911: Season 1 Episode 10 titled: A Whole New You - This episode aired 3-21-2018 and a segment of the episode featured a narcoleptic who had a cataplexy attack and ended up in the morgue!) as well as the challenges of living with Narcolepsy.
It is open to ALL - patients and their "Support Team" members.Join us, your input is invaluable.


 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#
Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!

Thursday, March 1, 2018

March Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, March 3, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, Suddenly Sleepy Saturday, etc.
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#
Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!

Tuesday, January 30, 2018

February Meeting Reminder

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, February 3, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
*****Meeting Room 1711 Frank Auditorium, - Evanston Hospital *****
*****Please Note The Room Change*****
At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, etc
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#
Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!

Tuesday, January 2, 2018

January Meeting Reminder

Thanks to all who joined us for our Holiday celebration in December. The pizza was good, the treats were better and the gifts were so much fun! Better yet, was the company who stayed to share the celebration.

Our next meeting of the
Midwest Narcolepsy Support Group 
is scheduled for

Saturday, January 6, 2018
  10:30 am - 12:00 noon
at
NorthShore University HealthSystem
Evanston Hospital
 2650 Ridge, Evanston, IL 60201
Meeting Rooms G952-G956, - Evanston Hospital 

At this Meeting we will have an open discussion on Narcolepsy and living with Narcolepsy, New Year's Resolutions, etc
It is open to ALL - patients and their "Support Team" members.
Join us, your input is invaluable.

 Feel free to join us on the phone if you can't join us in person. 
The conference phone is:

1-866-374-5135

~ Passcode ~ 7432626#
Please note that we have a NEW PASSCODE

We hope to see (or hear from) you on Saturday!!